Sharing Your Data

The following types of data sharing are explained on this page, with links for further information:

1. Cheshire Health Record 

2. Summary Care Record

3. Care Data

4. National Diabetes Audit

5. GPES Data for Pandemic Planning and Research (COVID-19)


1. Cheshire Health RecordCheshire Health Record

The Cheshire Health Record is a system designed to enable authorised doctors, nurses and other trained healthcare professionals to access a summary of your GP patient record. This could happen in hospital or unplanned care settings such as A&E or Out of Hours centres. The system will provide essential medical information which can be used to make informed clinical decisions about the treatment provided to you.

What Information will be shared?

Authorised healthcare professionals will be able to view information in your Cheshire Health Record. This may include access to:

  • Active and significant past problems, including the date of your last review
  • Acute and repeat medication
  • Drug allergies (such as penicillin)
  • Non-drug allergies (such as peanuts)
  • The most recent activity and contacts added to your record
  • Other organisations involved in your care

Why is it needed and what are the benefits?

Modern healthcare is tailored to the needs of the patient. Before prescribing a course of treatment your healthcare professionals need to understand your medical history. The information in your Cheshire Health Record will help to prevent possible adverse reactions and allow for safer, more efficient healthcare.

At present the transfer of relevant patient information between healthcare services is a lengthy and complicated process. This system shares information in an electronic format which is secure, private and fast.

Safeguards

Your Cheshire Health Record conforms to very strict governance and security policies.
It is only viewed at the point of treatment.
Only authorised healthcare professionals can view your record.
All records viewed are recorded with who has accessed the record and when. 

Your Choice

If you do not want to share your Cheshire Health Record there are two options available to you:

Tell your GP that you wish to opt out completely, so no-one apart from your GP can see your record even in a medical emergency

or

At the point of treatment you can refuse the health professional access to your record. This means the healthcare professional providing your care will not be able to view a summary of your record.
If you are unconscious or too unwell to give your permission the system will allow the healthcare professionals to view your record.

This will only occur in the case of a medical emergency.

 

For more information, please Click Here


2. Summary Care Record

There is a new Central NHS Computer System called the Summary Care Record (SCR). It is an electronic record which contains information about the medicines you take, allergies you suffer from and any bad reactions to medicines you have had.

 

Why do I need a Summary Care Record?

Storing information in one place makes it easier for healthcare staff to treat you in an emergency, or when your GP practice is closed.

This information could make a difference to how a doctor decides to care for you, for example which medicines they choose to prescribe for you.

Who can see it?

Only healthcare staff involved in your care can see your Summary Care Record. 

 

How do I know if I have one?

Over half of the population of England now have a Summary Care Record. You can find out whether Summary Care Records have come to your area by looking at our interactive map or by asking your GP

Do I have to have one?

No, it is not compulsory. If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery. You can use the form at the foot of this page.

More Information

For further information visit the NHS Care records website or the HSCIC Website

Subscribe to the newsletterDownload the opt out form >>>>


3.  Care data

How information about you helps us to provide better care

Confidential information from your medical records can be used by the NHS to improve the services offered so we can provide the best possible care for everyone.

This information along with your postcode and NHS number but not your name, are sent to a secure system where it can be linked with other health information.

This allows these planning NHS services or carrying out medical research to use information from different parts of the NHS in a way which does not identify you.

If you are happy for your information to be used in this way you do not have to do anything.

if however, you have any concerns or wish to prevent this from happening, please speak to practice staff or ask at reception for a copy of the leaflet.

 

More information can be found at the links below:

www.nhs.uk/caredata

www.nhs.uk/your-nhs-data-matters/


4. National Diabetes Audit

This GP Practice is taking part in an important national project about people at risk of diabetes and diabetes care and treatment in the NHS. The project is called the National Diabetes Audit (NDA).

If you have diabetes non-diabetic hyperglycaemia, impaired glucose tolerance or pre-diabetes, your GP Practice will share information about your diabetes care and treatment with the NDA. The type of information, and how it is shared, is controlled by law and enforced by strict rules of confidentiality and security.

Taking part in the NDA shows that this GP Practice is committed to reducing diabetes and improving care for people with diabetes.

For further information about how your data is used, please click here.

If you do not want your information to be used, please inform the receptionist, your GP or nurse. This will not affect your care.


5. GPES Data for Pandemic Planning and Research (COVID-19)

General Practice Transparency Notice for GPES Data for Pandemic Planning and Research (COVID-19)

This practice is supporting vital coronavirus (COVID-19) planning and research by sharing your data with NHS Digital.

The health and social care system is facing significant pressures due to the coronavirus (COVID-19) outbreak. Health and care information is essential to deliver care to individuals, to support health, social care and other public services and to protect public health. Information will also be vital in researching, monitoring, tracking and managing the coronavirus outbreak. In the current emergency it has become even more important to share health and care information across relevant organisations. This practice is supporting vital coronavirus planning and research by sharing your data with NHS Digital, the national safe haven for health and social care data in England.

Our legal basis for sharing data with NHS Digital

NHS Digital has been legally directed to collect and analyse patient data from all GP practices in England to support the coronavirus response for the duration of the outbreak. NHS Digital will become the controller under the General Data Protection Regulation 2016 (GDPR) of the personal data collected and analysed jointly with the Secretary of State for Health and Social Care, who has directed NHS Digital to collect and analyse this data under the COVID-19 Public Health Directions 2020 (COVID-19 Direction).

All GP practices in England are legally required to share data with NHS Digital for this purpose under the Health and Social Care Act 2012 (2012 Act). More information about this requirement is contained in the data provision notice issued by NHS Digital to GP practices.

Under GDPR our legal basis for sharing this personal data with NHS Digital is Article 6(1)(c) - legal obligation. Our legal basis for sharing personal data relating to health, is Article 9(2)(g) – substantial public interest, for the purposes of NHS Digital exercising its statutory functions under the COVID-19 Direction.

The type of personal data we are sharing with NHS Digital

The data being shared with NHS Digital will include information about patients who are currently registered with a GP practice or who have a date of death on or after 1 November 2019 whose record contains coded information relevant to coronavirus planning and research. The data contains NHS Number, postcode, address, surname, forename, sex, ethnicity, date of birth and date of death for those patients. It will also include coded health data which is held in your GP record such as details of:

  • diagnoses and findings
  • medications and other prescribed items
  • investigations, tests and results
  • treatments and outcomes
  • vaccinations and immunisations

How NHS Digital will use and share your data

NHS Digital will analyse the data they collect and securely and lawfully share data with other appropriate organisations, including health and care organisations, bodies engaged in disease surveillance and research organisations for coronavirus response purposes only. These purposes include protecting public health, planning and providing health, social care and public services, identifying coronavirus trends and risks to public health, monitoring and managing the outbreak and carrying out of vital coronavirus research and clinical trials. The British Medical Association, the Royal College of General Practitioners and the National Data Guardian are all supportive of this initiative.

NHS Digital has various legal powers to share data for purposes relating to the coronavirus response. It is also required to share data in certain circumstances set out in the COVID-19 Direction and to share confidential patient information to support the response under a legal notice issued to it by the Secretary of State under the Health Service (Control of Patient Information) Regulations 2002 (COPI Regulations).

Legal notices under the COPI Regulations have also been issued to other health and social care organisations requiring those organisations to process and share confidential patient information to respond to the coronavirus outbreak. Any information used or shared during the outbreak under these legal notices or the COPI Regulations will be limited to the period of the outbreak unless there is another legal basis for organisations to continue to use the information.

Data which is shared by NHS Digital will be subject to robust rules relating to privacy, security and confidentiality and only the minimum amount of data necessary to achieve the coronavirus purpose will be shared. Organisations using your data will also need to have a clear legal basis to do so and will enter into a data sharing agreement with NHS Digital. Information about the data that NHS Digital shares, including who with and for what purpose will be published in the NHS Digital data release register.

For more information about how NHS Digital will use your data please see the NHS Digital Transparency Notice for GP Data for Pandemic Planning and Research (COVID-19).

National Data Opt-Out

The application of the National Data Opt-Out to information shared by NHS Digital will be considered on a case by case basis and may or may not apply depending on the specific purposes for which the data is to be used. This is because during this period of emergency, the National Data Opt-Out will not generally apply where data is used to support the coronavirus outbreak, due to the public interest and legal requirements to share information.

Your rights over your personal data
To read more about the health and care information NHS Digital collects, its legal basis for collecting this information and what choices and rights you have in relation to the processing by NHS Digital of your personal data, see:



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